Personal Health Record
HealthKey brings together every record from every provider into one complete, patient-owned health record — reconciled, searchable, and ready to work for you.
What HealthKey does
From fragmented data across a dozen providers to a single, verified, longitudinal record — owned entirely by you.
Connect records from hospitals, labs, specialists, and wearables. HealthKey ingests FHIR bundles and reconciles conflicts automatically.
Full support for genomic assay results, biomarker profiles, and lines of therapy — giving you a truly complete oncology record.
Our PatientInfo layer delivers instant eligibility screening against open clinical trials — no waiting, no manual forms.
Track your treatment responses with out-of-the-box metrics: response rates, progression-free survival, and adverse event monitoring.
Share your complete record with any provider, instantly. No fax machines. No CD-ROMs. Just a secure, permissioned link.
Your data is never sold. You decide who sees what, for how long. Revoke access at any time with a single click.
For Patients
Your health history is scattered across a dozen portals, printed summaries, and provider notes that never quite line up. HealthKey changes that.
We pull every record into one place, reconcile the conflicts, flag the gaps, and give you a single source of truth you can share with any provider on the planet.
Learn about the PHRAuthorise FHIR data pulls from hospitals and clinics — or upload records manually.
Conflicting data is flagged. Duplicates removed. Your record becomes coherent.
Share with clinicians, explore trial matches, or download your full OMOP record.
For Researchers
HealthKey gives research teams access to longitudinal, consented, OMOP-standardised cohorts — with outcome metrics, multidimensional analytics, and predictive model building generated automatically.
Stop cleaning data. Start discovering.
Explore Research Tools →Our Mission
"Patients deserve to own the truth of their full health picture — not as a PDF export, but as a living, working record that acts on their behalf."
— HealthKey founding principle
The gap we're closing
Join the waitlist
HealthKey is currently in early access. Join patients and researchers already on the platform.
HealthKey PHR
A complete, patient-owned longitudinal record — built on the world's most rigorous clinical data standard, and designed to actually work for you.
Core capabilities
HealthKey ingests FHIR R4 bundles from any EHR, hospital portal, or lab system. Our ETL pipeline — powered by OHDSI tools and our own PHRofile and PHRogram components — transforms raw records into a clean, standardised OMOP structure. Multiple providers, one coherent record.
When two providers disagree on a diagnosis, medication, or measurement, our PHResolution engine flags the conflict and presents it clearly. You decide what's correct — with supporting evidence from each source. No more silent data errors.
We go beyond standard OMOP with extensions for lines of therapy, TNM staging, genomic assay results, biomarker profiles (EGFR, BRCA1/2, PD-L1, HER2 and more), and ICD-O-3 histology. The most complete oncology record available.
Our PatientInfo layer collapses complex OMOP queries into instant eligibility screening. When a new trial opens that matches your profile, you know. This is the infrastructure that powers CancerBot — and now it powers your record too.
Track your treatment responses with clinical-grade metrics: Overall Response Rate, Complete & Partial Response, Progression-Free Survival, Overall Survival, and adverse event monitoring — all derived directly from your record.
Share your full record — or a curated subset — with any clinician or research team. Set expiry dates, revoke access instantly, and see exactly who viewed what. Your permissions, your terms.
Who it's for
The HealthKey PHR serves every stakeholder in the care journey — with the same underlying data powering different views.
Patients
Researchers
Clinicians
How It Works
HealthKey's pipeline is built on the gold standard for clinical data — OMOP CDM — and designed to handle the messy reality of real-world health data.
Your journey
Sign up and verify your identity. We use bank-grade identity verification to ensure your record is unambiguously yours — protecting you and preventing data mixing.
Authorise HealthKey to pull data from your hospitals, GP surgeries, labs, and specialist clinics via secure FHIR connections. You can also upload records manually — PDFs, CDs, discharge summaries.
Our ETL pipeline ingests your FHIR bundles, maps all clinical concepts to standard OMOP vocabularies, and identifies conflicts. PHResolution flags anything that needs your review — you make the call.
Browse your complete longitudinal timeline. See trial matches update in real time. Track your outcomes. Share with providers. Export your data. Your record works for you, not the other way around.
HealthKey maintains live sync with connected providers. When a new lab result arrives or a prescription changes, your record updates — and your trial matches re-run automatically.
The technology underneath
We built HealthKey on the same standards that power global observational research — so your record isn't just useful today, it's future-proof.
Profiles your incoming FHIR bundles — identifying structure, gaps, and anomalies before a single byte touches your record.
Automatically generates the transformation scripts that map your source data to OMOP — cutting ETL time from weeks to minutes.
Detects conflicting or erroneous values post-import and surfaces them for patient-led reconciliation in a clear, guided interface.
Under the hood
The Observational Medical Outcomes Partnership Common Data Model is the global standard for clinical observational research. Your HealthKey record is stored in OMOP — meaning it's compatible with the entire OHDSI ecosystem and can be analysed with tools used by researchers worldwide.
We've extended the standard schema with oncology and genomics fields validated with the OMOP architects — so your record is both standard-compliant and clinically complete.
Join the early access programme and be among the first to have a truly complete health record.
Request AccessSecurity & Compliance
We don't treat security as a feature. It's the foundation every other part of HealthKey is built on.
Compliance
How we protect your data
All data is encrypted in transit using TLS 1.3 and at rest using AES-256. Your health record is never readable in plaintext — not by HealthKey staff, not by anyone.
You decide who can see your data, what they can see, and for how long. Every access grant is time-limited by default and revocable with a single action. We maintain a full, immutable audit trail.
We will never sell, licence, or share your personal health data with advertisers, insurers, or third parties without your explicit consent. Your record exists for you, not as a revenue stream.
Choose where your data is stored — UK, EU, or US regions. Your data never crosses jurisdictional boundaries without your explicit authorisation. Enterprise plans support on-premises deployment.
We run on enterprise-grade cloud infrastructure with regular penetration testing, automated vulnerability scanning, and 24/7 anomaly detection. Our security team reviews findings within 24 hours.
In the unlikely event of a security incident, we commit to notifying affected users within 72 hours — ahead of regulatory requirements — with a clear explanation and remediation steps.
Questions?
Enterprise customers can request our full security documentation, SOC 2 report, and penetration testing summary under NDA.
Contact UsPricing
Every patient gets a complete, full-featured health record at no cost — always. Research and institutional access is priced to reflect the analytical infrastructure we provide.
For Patients
Your complete OMOP health record, unlimited provider connections, FHIR import, conflict resolution, genomics profiles, trial matching, outcome tracking, and clinician sharing — all included, at no charge, forever. Patients should never pay to access their own health data.
For Researchers & Institutions
Access the consented patient cohort, the full analytics layer, and the predictive modelling suite that sits on top of the HealthKey PHR.
Our guarantee
Research access is priced on the analytical infrastructure and services we provide — not on monetising patient records. Patients must explicitly consent to their data being included in any research cohort, and can withdraw at any time.
Patients can always export their complete record in OMOP and FHIR formats, regardless of any research access agreements in place.
Every patient opts in individually. No blanket data sharing.
Patients can withdraw consent with one click. Data is removed from cohorts.
Research datasets are pseudonymised to HIPAA Safe Harbor standard.
For Researchers
HealthKey gives researchers access to longitudinal, consented, OMOP-standardised patient data — with outcome analysis, multidimensional metrics, and predictive model building built in from day one.
The data problem in research
Raw EHR extracts are inconsistent, incomplete, and coded differently across every site. HealthKey delivers data that's already been harmonised, validated, and structured for analysis.
Outcome Analysis
Stop spending months cleaning data and writing survival analysis code from scratch. HealthKey delivers pre-computed, reproducible outcome metrics derived directly from the longitudinal record.
Every metric can be sliced by disease, subtype, therapy type (adjuvant vs neo-adjuvant), line of therapy, and patient demographics — giving you the multidimensional view that single-site studies can never provide.
Multidimensional Metrics
HealthKey's analytics layer isn't just aggregate statistics. Every outcome metric is available across a full multidimensional cube — so you can explore exactly the population subgroup that matters to your research.
Cross any combination of dimensions with a few clicks:
Predictive Model Building
HealthKey's PatientInfo feature vector layer enables automated generation and maintenance of trained outcome models — turning the patient record into a foundation for clinical decision support.
The PatientInfo flat table gives you 100+ structured fields across demographics, staging, biomarkers, labs, treatment lines, and social factors — a ready-made feature set for any classification or survival model.
HealthKey automatically generates and retrains outcome prediction models for specific diseases and cohorts as new patient data accumulates. Models are versioned and auditable.
Trained models run at inference to rank standard-of-care treatment options for individual patients based on their feature vector — turning aggregate RWE into personalised clinical decision support.
Enterprise Feature
Enterprise partners can commission indication-specific models trained on custom cohort definitions, with bespoke feature engineering and model architectures tuned for their clinical use case. Models can be deployed via API or integrated directly into clinical workflows.
Real-World Evidence
RWE studies require sustained patient engagement over time. HealthKey makes this tractable: survey instruments are delivered directly through the patient interface, with responses automatically linked to the longitudinal clinical record — no separate data linkage step required.
Patient-reported outcomes sit alongside OMOP clinical data in the same analytical environment, eliminating the data silos that make most RWE studies so slow and expensive.
Discuss Your RWE StudySurveys delivered in-app at configurable intervals. Completion tracked and linked to patient record automatically.
Patient-reported outcomes are stored in OMOP observation tables — queryable alongside clinical events in the same analytical layer.
Because HealthKey is the patient's ongoing health record, retention rates are structurally higher than standalone study apps — patients have intrinsic reasons to stay engaged.
Ready to accelerate your research?
We'll walk you through cohort availability for your indication, the analytics suite, and how to get started.
Our Story
Health data is fragmented, inaccessible, and routinely fails the patients who need it most. Clinical trial matches go unfound. Conflicts go unresolved. Histories get lost between providers.
HealthKey exists to fix that — starting with giving patients the complete, accurate record they've always deserved.
Our Mission
We believe a health record should reconcile conflicting information, import from every provider, serve as a foundation for clinical decision-making, and — above all — belong to the patient. Not the hospital. Not the insurer. Not us.
What we believe
Every product decision asks: does this give the patient more control, more clarity, or a better outcome? If the answer is no, we don't ship it.
We build on the standards — OMOP, FHIR, OHDSI — because interoperability isn't a feature, it's a responsibility. Shortcuts in clinical data cost lives.
You always know exactly what data we hold, who has seen it, and what it's used for. Our business model depends on trust, not data extraction.
Building the infrastructure for patient-owned health data is a decades-long project. We're not optimising for the next quarter — we're building for the next generation of care.
The Team
We're a team of engineers, clinicians, and data scientists who've spent careers working at the intersection of health and technology.
Our engineers have built clinical data pipelines for academic medical centres and pharma research networks. They know what production health data actually looks like.
Practising oncologists and clinical informaticists ensure our record captures what clinicians actually need — and that trial matching logic reflects real eligibility criteria.
Former academic researchers and pharma data scientists who understand the full lifecycle of evidence generation — from patient record to published outcome.
We're hiring across engineering, clinical, and product. We're also always looking for research and clinical partners.
Get in Touch
Whether you're a patient, a clinician, a researcher, or a potential partner — we'd love to hear from you.
General Enquiries
Research & Partnerships
Security
Registered Office
HealthKey Ltd
Edinburgh, Scotland
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